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  1. #1
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    Giveforward for a Friend of Mine aka Help a Child Eat Bacon

    Our friend's are attempting to raise money for a liver transplant for their toddler Evan. Little man is very sick and is on a special low protein diet to avoid ammonia building up in his system. Read the page. Every little bit helps. Thank you.

    https://www.giveforward.com/fundrais...evan-s-journey

  2. #2
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    Pediatric Liver Transplant info:
    * ~7 pre-transplant deaths per 100 wait list years for his age group
    * Average wait-list time is around a year (so ~7% chance of death on average)
    * There is a 95%+ chance of success for this procedure in the short term and this child is an ideal candidate for it health-wise.
    * Average graft survival time is something like 15 years
    * The vast majority of liver transplants come from deceased donors, but it is possible for a parent to donate if they are compatible (I think).

    In summary, the procedure has a high chance of working and will probably carry him through his developmental years with normal enzyme balance. Without it, his physical/mental growth may be stunted and he'll be highly susceptible to nutritional catastrophes. If his parents are having trouble managing it now, imagine what will happen when he can walk around and eat whatever the heck he wants and refuse to eat things more persistently. If he gets 15 years out of the liver, he'll be 16 and hopefully old enough to understand nutrition. There are potential problems with rejection, meds, etc., but in my opinion this looks like the right choice.

    References:
    Spoiler: show
    http://srtr.transplant.hrsa.gov/annu...3_liver_13.pdf
    Pediatric stats start on page 87 (I think).
    There is a useful map for your friends on page 95, if they're thinking of moving to increase their odds of getting a transplant.


    You can't spell Fund without Fun! goooooooo

  4. #4
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    If it is of any bonus in regards to liver transplants, it isn't necessary to have a perfect 6/6 HLA Class I antibody donor/recipient match for livers. Rejection rates are lower with a single mismatch. Right there the odds for finding a candidate donor rises. Even better odds for finding a match for being white.

    How do I know this? I have been making raw material for transplant diagnostics products for 8 years. Our president was Dr. Paul Terasaki before he sold the company due to old age. Guy made the transplantation field what it is today.

    And you are right, most donors are from the recently deceased.

    Good luck with the fundraising.

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    in my opinion this looks like the right choice.
    I agree entirely. I'm glad it's not a decision I have to make.

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    Bumping this because I can!

  7. #7
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    If you sticky it, it'll be bumped long time.

  8. #8
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    Touche.

  9. #9

    Sent a little donation and reposted it on my fb. Good luck to them!

  10. #10
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    Thanks Luci!

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    Screw it, I don't need a new cellphone yet. I dare everyone to best me.

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    Quote Originally Posted by Hellfury View Post
    Screw it, I don't need a new cellphone yet. I dare everyone to best me.
    Damn son. Can't thank you enough.

  13. #13
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    Bumping again. So far they been able to raise 1,400 dollars with 44 days left to go.

  14. #14
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    Bumping yet again. Maybe I should just temporarily sticky this thing. Any donation helps no matter how small.

  15. #15
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    100$ from me.

    If you can spare a few dollars it's worth it.

  16. #16
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    Thanks Mina!

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    Bumping again! It's for a good cause!

  18. #18
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    Sunday night at about 3am my friends got a call from the hospital stating they thought they had a match for the little man. Evan just went into surgery for his liver transplant. I'm not the praying type, but if you are, please send some his way. This is far from a sure thing.

  19. #19
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    And apparently I didn't see the time stamps but Evan is out of surgery. His ammonia levels are still a little high. They are keeping him under sedation for the next 24 - 48 hours and will then put him on blood thinners to prevent clotting. The new liver is already producing bile which is great but he is nowhere near out of the woods yet. Here's the little soldier.


  20. #20
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    Thank you Brill. I got the e-mail updates on this but it's buried somewhere in my 9000 unread e-mails.

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