My One Year

[Minions]

The GI stuff is pretty awful from my limited knowledge of the disease. I did see a patient with CF who was days away from his 40th birthday a month ago though. There was a really big breakthrough study/article in new england journal (most well respective med journal) on CF treatment a few weeks back. Tried to find a free version in case you cared but no luck. Also just found your blog, I thought the "sex change" part during the doc time out was a nice touch haha

What this what you were looking for? Looks like it was posted in early november.
http://www.ivanhoe.com/channels/p_ch...?storyid=28419

also

http://articles.latimes.com/2011/nov...-drug-20111103

[Myrrh_Quetz]

I wish I got a chance at that drug before my transplant.

[Vandole]

myrhh, i said scars or gtfo.


not pics of recovery

it's been a year, we deserve a then and now!

[Darlantan]

Glad to see you are still rocking, dude.

Its probably just the hair style, but you reminded me of "The Listener" guy.

[Myrrh_Quetz]

myrhh, i said scars or gtfo.


not pics of recovery

it's been a year, we deserve a then and now!

Fine, let me find a camera. Damn greedy people. Like one sexy face isn't enough.

[Colenzo]

ill show you a sexy face!

[avelle]

As someone else said, I hope you make these posts every year for a long time. I can't even imagine how much you've gone through. The worst I've ever had was a broken arm.

[Cream Soda]

Glad you're still around

[tyven]

grats, duder! your positive attitude is inspirational! also i agree with vandole, then and now ftw.

[Timwakefield]

Nobody likes you.

j/k I miss you glad to see you're doing well buddy!

[Sqwunk]

I remember when you posted those pics last year too. Grats on year 1 complete, cheers to many more to come.

[Kaeko]

What this what you were looking for? Looks like it was posted in early november.
http://www.ivanhoe.com/channels/p_ch...?storyid=28419

also

http://articles.latimes.com/2011/nov...-drug-20111103

Yea, Ivacaftor is the drug in question. It's considered a breakthrough because it actually targets the true problem in CFers, which is the CFTR gene mutation. All CF therapy before this is essentially symptom management. They only tested on adults in the trial though - ideally you would want therapy available from childhood.

[Ragnus]

Congrats on one year into that! I can't even imagine what it was like wondering if you could have a double reject.

I'm not really familiar with the disease Myrrh. Did the new set of lungs cure or just alleviate the CF?

[Lucienne]

Congratulations! I admire your positive attitude and determination. I know how much it sucks to live with something incurable that effects your life, even though my blood problem is really minor in comparison. Hang in there!

[psychodwarf]

Congrats on the first of what I am sure will be many more years to come.

[tyven]

this is a serious question

how does this affect your sex life?

[Myrrh_Quetz]

this is a serious question

how does this affect your sex life?

Do you mean new lungs or CF? Cause CF plays a roll on my sex life.


Edit:

I'm not really familiar with the disease Myrrh. Did the new set of lungs cure or just alleviate the CF?

Because this question is always asked, I posted that answer on the first page.

[Fhqwghads]

Awesome that things have been working out so good. I hope things continue to go this well for you.

[Caiyuo]

Happy for you, man

[tyven]

Do you mean new lungs or CF? Cause CF plays a roll on my sex life.

both i guess, i mean i imagine you couldnt slay for a while after you got the lungs. i am just wondering if you can slay at all. do your innards fall apart?