I'm on Entyvio for my Crohns disease. It's sorta like Remicade where it is administered via IV slowly over a period of time. Unlike Remicade though or other similar drugs it's designed to only treat Crohns or Ulcerative Colitis and supposedly does not suppress your immune system. I started it last year after a colonoscopy showed the disease had returned. I had to have a bowel resection in January 2019 because a small part of the intestine had gotten so damaged and scarred that it was only a matter of time before I got obstructed. My GI doctor said it was only in two small spots near the surgery site but it was serious enough that he wanted to put me on something right away to try and get ahead of it this time. I have taken it before years ago kind of.. When it was new my doctor wanted to try it on me to get me into remission. He was enthusiast about it because studies had shown good results, only works in your gut, etc. Thing is like Remicade it is VERY expensive. When you first start treatment they give you what they call, "loading doses" very close together and if you tolerate it and their are no side effects you start treatment of one infusion every eight weeks. Back then just after I had started my first regular treatment like a week later I got a letter from my insurance company saying, "NOPE! TO EXPENSIVE!" and they wouldn't pay for it so I had to stop it. I was put on and off Prednisone (FUUUUUUUUU >_<) and it just gradually got worse. Cut to recent times.
So I'm on it for real now and they said at first not to worry that insurance covers it now and that costs have come down. The lady that handles insurance at their office said that I would only have to pay $358 every time I have a treatment. That's it. Well she was WRONG!! I got a bill the other day for over 4,000 dollars! Turns out that the 358 is just the co-pay every time I have the treatment! The insurance company does pay a huge chunk of the cost and they eat (lose money) on some of it. My out of pocket cost is $1,428 for each treatment. So with the co-pay it's really $1,786. The bill I got was just for the first few loading doses and not my latest treatments. I literally don't know what I'm going to do. I can't afford this.