The boy whose muscles are turning to bone - TODAY Health
That's nuts...Josh has an extremely rare genetic condition called fibrodysplasia ossificans progressiva, or FOP. There are only about 700 confirmed cases worldwide — about one in every 2 million births. The condition, which causes bone to form from soft tissue, ultimately confines its victims to permanent immobility before taking their lives, usually by the victims’ 40s.
“Every little bump, every surgery leads to this change in the tissue where it really becomes bone,” Dr. Nancy Snyderman, NBC’s chief medical editor, told TODAY’s Ann Curry as Josh snuggled against his mom in the show’s New York studio. “The concern is that your body can become frozen with bone.”
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