Lung transplant?

[Myrrh_Quetz]

So, I recently got on the lung transplant list because of my Cystic Fibrosis and I was wondering if anyone here knows or knew someone who has been on it. I'm looking for some advice on dealing with the stress of it all, wondering how long some people waited, how they are doing after the transplant, and have they gotten any of the bad side effects from the anti-rejection meds.

[Abandon]

can't say we've had transplant questions before.

[archibaldcrane]

Does a lung transplant cure cystic fibrosis?

What's that old adage? Don't throw good lungs after bad? Something like that.

[Vandole]

can't say we've had transplant questions before.

is there anything else that hasn't been covered here by bg medical? cause i really didnt expect to hear any transplant questions here.

[Atreides]

Does a lung transplant cure cystic fibrosis?

What's that old adage? Don't throw good lungs after bad? Something like that.

...really?

[archibaldcrane]

...really?

Buck up kid, this is the internet.

[Atreides]

oh I am guilty of my own fair share of dickishness, but that's just a whole nother level

[Nekio]

Cystic fibrosis is a genetic disease resulting from an abnormal protein in the lung (and elsewhere), so yes the lung problems can be cured with a transplant. As for the OP's questions, lung transplants are pretty uncommon, and as a primary care physician I've never taken care of a patient who underwent one. I'd just ask your transplant surgeon or check out a support group like http://www.2ndwind.org/.

[archibaldcrane]

Cystic fibrosis is a genetic disease resulting from an abnormal protein in the lung (and elsewhere), so yes the lung problems can be cured with a transplant.

rock and roll, good luck with your search for a new lung. I'm pretty sure lung transplants are crazy-rare, meaning there should be a bunch of 'em kicking around unless they match even worse than normal organs. My uncle got a new kidney last year and felt more healthy a week later than he had in years, and when my cousin died of an unexpected heart attack her organs ended up in 7 different people, which is crazy.

Pretty sure they left her lungs though.

[Keria]

http://community.livejournal.com/cystic_fibrosis/ seems pretty good although very medical in places. You do need to sign up to post though. Best of luck

[Dimmauk]

So, I recently got on the lung transplant list because of my Cystic Fibrosis and I was wondering if anyone here knows or knew someone who has been on it. I'm looking for some advice on dealing with the stress of it all, wondering how long some people waited, how they are doing after the transplant, and have they gotten any of the bad side effects from the anti-rejection meds.

A girl at my work recently had this operation, and has made a full recovery and is back at work. She no longer has to use the air tank, but is still very thin. It took a while for her to recover, and go through therapy. She said the hardest part was not being able to talk for a while.

[Havok]

So, I recently got on the lung transplant list because of my Cystic Fibrosis and I was wondering if anyone here knows or knew someone who has been on it. I'm looking for some advice on dealing with the stress of it all, wondering how long some people waited, how they are doing after the transplant, and have they gotten any of the bad side effects from the anti-rejection meds.

One of my best friends has CF as well. I can forward your post to her and see what she has to say if you like. I can also get links to CF forums that she uses where there is plenty of advice about all that stuff.

[Myrrh_Quetz]

I visit the healingwell forums for CF related stuff but a lot of people there annoy the crap out of me. Figured it was worth a shot to see here. It's the internet, you never know lol.

[Uzor]

Glad to see you finally got on the list Myrrh. We've had our differences, but I truly am happy for you, having read your rants about the disease as well as that thread where you ended up in the hospital, so good luck with the operation. I expect lots of happy posts posted on QCDN later when you get a time for it and when you're done with the surgery!

[Myrrh_Quetz]

Thanks, Uzor. I plan on posting a Goodbye thread on Qcdn when I get my call as a just incase. Since my childhood friend with CF died during his surgery, the death route is sitting in my head so I want to cover my bases, so to speak.

And ya, that Feb infection nearly killed me. Being in coma and having been told that I, by all accounts, should have died was not fun.

[shindycat]

Wishing the best for you. My mom is a respiratory therapist, I will ask her what she knows about lung transplants tomorrow.

[Scythiroth]

Good luck to you. Never personally known someone needing a transplant, seems scary though. =(

[Norellicus]

Buck up kid, this is the internet.

John Gabriel's Greater Internet Dickwad Theory is not a defense for the guilty.

Can we get a little Wheaton's Law in here?

[aethyr]

<3 Big hugs for you, Myrrh. Be brave!

[Furtwangler]

Don't really have any kind of advice for you since I don't even know someone who has had a transplant(at least not closely) but good luck and hope you make it through everything ok.