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Thread: Lung transplant?     submit to reddit submit to twitter

  1. #21
    BG Medical's Student of Medicine
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    To answer your questions about the anti-rejection meds they prescribe, there usually aren't any serious side effects. They are, however, immunosuppressive so you may find yourself a little sicker than normal (and consequently given anti-virals or antibiotics to make sure you aren't seriously ill).

    You will have to wait quite a while if you have bad luck. Organs are a little more complicated than blood and must be cross-matched perfectly. If you are given the wrong lungs with too, you will die almost instantly and your organs will liquefy (no, this is not a joke). Consider that before you get transplanted. CF, however, carries far worse consequences as you get older so it's something you have to weigh.

    Many people with lung transplants by good surgeons do well years after their surgery. It's all about will and how well you live afterwards. You'll certainly notice a difference when you take your first full deep breaths.

    The best you can always do is hope. Just remember that for a while it's going to be very rough as they make sure your body doesn't reject the new organs. If that happens, you'll wish you still had the CF lungs, believe me.

  2. #22
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    Quote Originally Posted by archibaldcrane View Post
    when my cousin died of an unexpected heart attack her organs ended up in 7 different people, which is crazy.
    Did your cousin happen to be Will Smith?

  3. #23
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    Quote Originally Posted by kuronosan View Post
    The best you can always do is hope. Just remember that for a while it's going to be very rough as they make sure your body doesn't reject the new organs. If that happens, you'll wish you still had the CF lungs, believe me.
    Actually, I doubt failing lungs would be worse then what my CF lungs currently are. I have 17% PFTs and am on 3 litres of Home O2 24/7. Lung transplant is the only option I have. This isn't like a I'm healthy and am just covering my bases thing. lol If I had another option I'd take it. I've read the book on the possible side effects from the drugs and one of them is skin cancer. Like 25% chance of that happening. There were some other serious ones but I don't remember them all. The cancer one stuck out the most for me. lol

    I know how long the wait can be. I had a CF friend wait 2 years for his lungs. He was a rare blood type so he waited a long time. I'm A+ with no antibodies so the chances of me getting lungs quick are pretty high. Just need to wait on someone to die.(Man, it's fucked up saying that)

    I'm just curious in how some people with lung transplants handled their meds and how they went for dealing with the stress of it all. My friend who got his lungs told me that if two more months had passed before he got his call he was going to take himself off and just let himself die.

  4. #24
    Conejita's Jolly
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    That sucks man, I hope you get better.

  5. #25
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    Warn us if you gain the psychic ability to make our mitochondria spontaneously combust, please.

    I think that only happens in cornea transplants, though.

  6. #26
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    I doubt we can make you feel any better, but I wish you the best luck. I can't even imagine how bad the stress must be during the waiting.

  7. #27
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    best of luck, can only hope everything goes well for you, before during and after the surgery.

  8. #28
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    I know it can be hard to get onto any kind of list in this country sometimes, so at least that's a step forward. I also agree with a previous post: will power is the key. There are obviously some things you can't control, no matter how much you fight, but there are other things that you can work your way through. I wish you the best of luck, lots of strength, and hope very much that you get an excellent doctor.

  9. #29
    BG Medical's Student of Medicine
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    I do wish you the best of luck. CF can be really harsh, especially when you get coinfections with Pseudomonas or other bugs.

    Bear in mind, though, that if you reject organs like lungs when it comes to tissue type, you die. You don't unreject them.

    I hope you get a donor soon.

  10. #30
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    Quote Originally Posted by kuronosan View Post
    Bear in mind, though, that if you reject organs like lungs when it comes to tissue type, you die. You don't unreject them.
    Well that sucks.

    Gl with everything.

  11. #31
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    Don't know you but will certainly keep my fingers crossed for you. Good luck!

  12. #32
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    You mean this thread isn't a massive WHOOSH ?
    It's a real question about lung transplants ? How about... asking the surgeon(s) ?
    He/She/they know(s) better than random people on a gaming forum, surely ?

  13. #33
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    obvious troll is obvious. I mean it's not like he's the first person to ever have a transplant and only the doctors will know what he will go through, as he stated before, you never know if you'll find someone with the same issue or gone through the same thing as you on the internet if you don't ask. Normally I mock BG Medical, but hell with an organ transplant, not only would I be bugging my doctor, i'd be hitting up any message board I post on in the off chance I can get some realistic feedback.

  14. #34
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    Wow, I sympathize with you and hope you get some new lungs soon, and that the surgery goes well and they like their new home. While I can't imagine what having CF is like, I have asthma, and it's been bad enough a few times where I've had to go to the emergency room, so I can at least relate a little on what it's like when you can't breathe. Good luck with everything, hang in there and stay strong.

  15. #35
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    I'll sell you one of my lungs if you have a lot of money, non-smoker, 21 year old healthy athletic lung, not sure if I'm a match so we'd have to see

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